Other Ways you can help
There are many ways you can help make our inaugural symposium a success!
Fund a Patient Sponsor Program
The Cure Blau Syndrome Foundation has received multiple requests from families of children struggling with Blau Syndrome and diagnosed adults eager to attend the Symposium. For many of these individuals, the costs associated with medical care have drained their extra resources to travel. Through the Patient Sponsor Program, sponsors can ensure that a member of the Blau community has the opportunity to learn from experts in the field and connect with others living with Blau Syndrome-most of which have never met another person with living with this disease before.
Support our Rare Disease Auction
Support our online auction benefiting the Inaugural Cure Blau Syndrome Symposium. We are asking for donations, big and small, as everything helps. There is no end to the types of items that can be auctioned. Just to name a few:
Accommodations - Travel - Rentals - Arts & Crafts - Gift Certificates - Services - Training
All donations will be acknowledged through our website and social media. To make a donation, please email us at email@example.com
Please make cheques payable to The Cure Blau Syndrome Foundation and mail to:
Cure Blau Syndrome Foundation
1138 Old Esquimalt Road
Victoria, BC V9A 4X6