Cure Blau Syndrome Foundation
Join Us! / Log In
For United States tax-deductible donations in
USD, please donate here:
BLAU SYNDROME
Blau in the News
Current Issues
Pediatric Supports
RESEARCH
Enrol in a Research Study
Research Database
Research Panel 2020
STORIES
Lexi
Keira
WHAT WE DO
WHO WE ARE
GET INVOLVED
Volunteer
RARE Auction for a RARE Disease
Fundraise
Donate
MEMBERS
Forum
MEMBERS
The articles below are from media outlets around the world sharing
patients' journeys with Blau Syndrome.
This Victoria family hopes to film documentary about 6-year-old daughter’s extremely rare disease
Dad tries to shed light on girl’s rare disease by making documentary
Royal Roads takes active role in search for cure to rare disease
Tre-årige Pernille har blau-syndrom: ’Uvisheden er rigtig slem’
Family stays positive amid failing eyesight
CSUF professor spends off-campus time focused on 11-year-old daughter with rare disease
Understanding childhood arthritis: from diagnosis to treatment
Why I can't get legally married because of my disability
Quest to cure Blau syndrome a family affair
Blau Syndrome: A Mom Takes Charge
“I never met another child with the same condition as me”
Makenna suffers from Blau Syndrome, rare inflammatory disorder
