The articles below are from media outlets around the world sharing

patients' journeys with Blau Syndrome.

Screen Shot 2019-08-20 at 1.12.55 PM.png
This Victoria family hopes to film documentary about 6-year-old daughter’s extremely rare disease
Screen Shot 2019-08-20 at 2.26.49 PM.png
Dad tries to shed light on girl’s rare disease by making documentary
Royal Roads takes active role in search for cure to rare disease
Screen Shot 2019-08-20 at 2.44.32 PM.png
Tre-årige Pernille har blau-syndrom: ’Uvisheden er rigtig slem’
Screen Shot 2019-08-20 at 12.37_edited.p
Understanding childhood arthritis: from diagnosis to treatment