The articles below are from media outlets around the world sharing

patients' journeys with Blau Syndrome.

Child with Blau Syndrome
This Victoria family hopes to film documentary about 6-year-old daughter’s extremely rare disease
Dad tries to shed light on girl’s rare disease by making documentary
Royal Roads takes active role in search for cure to rare disease
Tre-årige Pernille har blau-syndrom: ’Uvisheden er rigtig slem’
CSUF professor spends off-campus time focused on 11-year-old daughter with rare disease
Understanding childhood arthritis: from diagnosis to treatment
“I never met another child with the same condition as me”
Makenna suffers from Blau Syndrome, rare inflammatory disorder

Contact us:

 Mail: Cure Blau Syndrome Foundation 1138 Old Esquimalt Rd.   Victoria, BC  Canada V9A4X6

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