Follow our journey: cureblausyndrome

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  Mail: Cure Blau Syndrome Foundation 1138 Old Esquimalt Rd.   Victoria, BC  Canada V9A4X6


The articles below are from media outlets around the world sharing

patients' journeys with Blau Syndrome.

Child with Blau Syndrome
This Victoria family hopes to film documentary about 6-year-old daughter’s extremely rare disease
Dad tries to shed light on girl’s rare disease by making documentary
Royal Roads takes active role in search for cure to rare disease
Tre-årige Pernille har blau-syndrom: ’Uvisheden er rigtig slem’
Understanding childhood arthritis: from diagnosis to treatment
“I never met another child with the same condition as me”