The articles below are from media outlets around the world sharing
patients' journeys with Blau Syndrome.
This Victoria family hopes to film documentary about 6-year-old daughter’s extremely rare disease
Dad tries to shed light on girl’s rare disease by making documentary
Royal Roads takes active role in search for cure to rare disease
Tre-årige Pernille har blau-syndrom: ’Uvisheden er rigtig slem’
Family stays positive amid failing eyesight
Understanding childhood arthritis: from diagnosis to treatment
Why I can't get legally married because of my disability
Blau Syndrome: A Mom Takes Charge
“I never met another child with the same condition as me”
