Articles from media outlets around the world sharing

patients' journeys with Blau Syndrome

Child with Blau Syndrome
This Victoria family hopes to film documentary about 6-year-old daughter’s extremely rare disease
Blau Syndrome a Rare Disease
Dad tries to shed light on girl’s rare disease by making documentary
Search for cure to rare disease -  Blau Syndrome
Royal Roads takes active role in search for cure to rare disease
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Tre-årige Pernille har blau-syndrom: ’Uvisheden er rigtig slem’
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Family stays positive amid failing eyesight
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CSUF professor spends off-campus time focused on 11-year-old daughter with rare disease
Understanding Arthritus
Understanding childhood arthritis: from diagnosis to treatment
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Why I can't get legally married because of my disability
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Quest to cure Blau syndrome a family affair
Blau Syndrome: A Mom Takes Charge
Blau Syndrome: A Mom Takes Charge
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“I never met another child with the same condition as me”
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Makenna suffers from Blau Syndrome, rare inflammatory disorder