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Registration

Join us for the Blau Syndrome International Summit held on July 9-10, 2026, at California State University, Fullerton for a two-day gathering bringing patients, caregivers, clinicians, and researchers together in partnership, with a $250 all-inclusive registration covering:

1) access to both days of the Summit

2) breakfast and lunch,

3) one evening dinner and networking event and

4) access to shared spaces designed to encourage connection between families, clinicians and researchers.

 

Travel scholarships are available for patients and caregivers. All attendees must register, but patients and caregivers are exempt from the registration fees

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Role at the Summit

Which best describes you?
Are you presenting a poster or talk?
Yes
No
Will you attend the natural history study or research sessions in order to collect data or study enrollment directly from Blau patients, if offered?
Yes
No
May Be

Accessibility, Health & Support Needs

To help us create an inclusive and accessible experience, do you have any needs we should be aware of?

 Children & Youth Attendance (If Applicable)

If families are attending. Will you be bringing children or youth?
Yes
No
Would you like your child to participate in organized youth programming if offered?
Yes
No

Research & Community Engagement

These questions build your ecosystem long-term.

Are you registered in the Blau Syndrome International Registry?
Would you like more information about participating in research studies?
Are you interested in:

Consent, Media & Communication

May we contact you with post-summit materials and future opportunities?
Yes
No
Do you consent to being photographed or recorded during the event?
Yes
No
If you are a patient or caregiver, may we contact you about sharing your story?
Yes
No

Optional Ways to Support the Community


You are a
Patient or Caregiver
Professional or Industry
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Copyright © 2023, Cure Blau Syndrome Foundation   |   All Rights Reserved.

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