I.General Information

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The Cure Blau Syndrome Foundation and associated sponsors are hosting the inaugural Research Symposium at Royal Roads University in Victoria, BC. Patients, medical doctors, scientists, and advocates will be collaborating on pertinent issues including quality of life, advancements in treatment, disease progression, clinical research, and advocacy.  

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II.Guidelines for Submission and Deadlines

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Proposals must be submitted by 11:59 PM PST on March 31st, 2020 to info@curebs.com. Please consider the Guidelines for Submission prior to submitting your proposal. Presenters will be scheduled on June 25 or June 26, 2020.

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III.Notification

 

The proposal organizer will receive an email confirmation when a proposal has been successfully submitted online. If you do not receive a confirmation email message, contact info@curebs.com.  The lead presenter will be  notified of the decision regarding acceptance or rejection of the proposal by April 7th, 2020. The lead presenter must notify all participants of the proposal’s acceptance, scheduled time and date of the session, and other relevant information when this information is received.

 

IV.Types of Submissions

              

The following types of proposal submissions will be accepted. Please indicate your preference and we will do our best to accommodate your selection:

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Lecture Session

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This 45-minute lecture session is open to those interested in presenting their scholarly, research-based, or creative activities. Lectures will be categorized for target audiences of medical professionals/scientists and patients/advocates. Please provide 30 minutes for the lecture and 15 minutes for questions and answers at the end of the session.

 

Poster Session

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This 45-minute poster session is open to those interested in presenting their scholarly, research-based, or creative activities. Graduate or undergraduate students presenting are asked to identify their affiliation with a college professor/faculty member in the presentation. Presenters must display their work on provided poster boards and answer attendee questions. Posters will be categorized as clinical, translational research or patient experience/quality of life.

 

Panel Speaker

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Participate in a 45-minute panel session with a panel of speakers with a related interest. Panel discussions will center on 1) therapeutic challenges in Blau, 2) understanding disease mechanism, and 3) disease impact on patient and family.

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Round Table

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Lead a small group discussion on your scholarly, research-based, or creative activities in a ten-minute round table discussion. Multiple groups will rotate through to learn about your topic. 

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V.Review of Proposals and Criteria

             

All proposals receive a review by Foundation Board Members and the Foundation Medical Advisory Board as needed.

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General criteria for review:

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1. Significance to the field

2. Clarity of proposal

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VI.Presenting at the Conference

              

All presenters are expected to make well-organized and coherent presentations on their specific content. If presenting a poster, it is recommended that posters be approximately 30"x40".

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Questions? Email info@curebs.com