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Lexi Story.jpg

Lexi had Blau syndrome.


Her condition meant that she lived with constant pain. Nearly every joint and tendon in her body was inflamed and sore. Her eyes were attacked by uveitis and her family battled to save her vision.Her growth was severely stunted and her bones were in early stages of osteoporosis. Her immune system was not effective and overreacted in unpredictable ways to viruses.


Lexi was lost in October, 2019 and her family continued her legacy by fighting for others with Blau Syndrome.

To do this, they need your help. Share your story, contribute to our research fund, volunteer your skills, and share about Blau! There are many ways you can help. 


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