Blau Syndrome

Research Symposium

Postponed Until Further Notice

Please join the Cure Blau Syndrome Foundation at Royal Roads University in Victoria, BC, Canada, for the inaugural Blau Syndrome Research Symposium. This event provides a wonderful opportunity to collaborate with patients, medical doctors, scientists, and advocates on pertinent issues including quality of life, advancements in treatment, disease progression, clinical research and advocacy, including leading researchers in the field:

 

  • Carine Wouters, M.D., Ph.D.
    University of Leuven, and University Hospitals Leuven, Belgium

  • Carlos Rose, M.D.
    Alfred I. du Pont Hospital for Children, U.S.

  • Ruth Napier, Ph.D.
    Oregon Health & Science University and VA Portland Health Care System, U.S. 

Presenters will be confirmed closer to the Symposium date

Accommodations

The Cure Blau Syndrome Foundation has secured a block of rooms at different locations available for conference attendees at a discounted group rate. Rooms are subject to availability and must be booked no later than May 23, 2020. The web links and information needed to book rooms are shown below in CDN$:

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Royal Roads University 

2005 Sooke Road Victora, BC, 

Website: www.royalroads.ca

Location:        Walk to all sessions within a few minutes. (*Rooms on campus are for 1-2 people only

                       and are not suitable for larger families)


Campus accommodations are available on a first-come-first-serve basis to support students in residency.  Please visit the Campus Accommodations website and click ‘Book Now’ to make your reservation. 

Arrival Date:           June 24th 

Departure date:     June 28th

Room block code:  BLAURESSYM2020  (please ensure that no spaces are copied when pasting online).

Additional nights can be booked based upon availability through Guest Services by emailing guestservices@royalroads.ca.

If you are experiencing issues reserving your room using the code, please check the following prior to contacting Guest Services at the University:

The online booking system works best in Google Chrome Check the dates of your stay.

You will get a sold out message, if you enter dates more than one day pre/post the residency dates. Additional nights may be booked, based upon availability and subject to non-residency rates, directly with Guest Services.Ensure when copying your room block code a space is not copied over either before or after the code.  

A reminder that check-in is at the Guest Services Desk located in the Learning and Innovation Centre (LIC) on the main level. 

Full payment will be due at the time of check-in. Accepted methods of payment include Visa, MasterCard, American Express, Debit Card, and cash.  

Room Rate:    Dorm rooms: $60 plus taxes / night

                       For single occupant, shared bathroom. 

                       Ensuite rooms: $90 pus taxes / night

                       For single or double occupancy, ensuite

Parking:        On Campus

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Holiday Inn Express & Suites, Victoria-Colwood

318 Wale Road Colwood, BC, V9B 0J8

Office: 250-385-7829 Toll Free: 1-844-385-7829 Fax: 778-265-6855

Website: www.hiexpress.com/victoriabc

Location:      This location is close to supermarkets and restaurants and is a 20-25 minute walk from all sessions.


Room rate:  Standard Room - Two Queen Beds $179.10 plus 16% tax per night for June 24th, 25th and 26th.

                                                $228.60 plus 16% tax per night for June 27th

                    King Room - One King Size Bed - $188.10 plus 16% tax per night for June 24 and 25th. 

                                        $170.10 plus 16% tax for June 26th

                                        $219.60 plus 16% tax for June 27th.

Note: These rates are based on two adults in the room. There is an additional charge of $15 plus tax per person per night for extra adults in room. No charge for children.

All of our rates include breakfast which will be served between 6:30am and 9:30am Monday through Friday and 7:00am to 10:00am Saturday and Sunday.

Parking:         Free

          
Cancellation: 48 hours prior to arrival

Booking:        When booking a room you must call and give the reference "Blau Symposium"

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Best Western Carlton Plaza Hotel

642 Johnson Street, Victoria, BC 

Phone: 250-388-5513

Website: www.bestwestern.com 

Location:         This location is close to downtown and is a 20-25 minute drive or 45 minute bus ride.

Room rate:      $199.00 plus 16% tax per night for June 24th, 25th and 26th

                        $259.00 plus 16% tax per night for June 27th

Room type:     Traditional room with 2 double beds or Traditional room with 1 king bed
                       (Studio suite with kitchen may be available based 
on availability with additional $40.00. This studio

                        suite cannot be booked online. You must contact Manami Kamijo.  See contact info below.)

Parking:          $12.50 plus 5% GST per night per vehicle (valet style). Self parking is not available.

Cancellation:   48 hours prior to arrival

Online booking URLhttps://www.bestwestern.com/en_US/book/hotel-rooms.62063.html?groupId=6R6KI0K6

Alternatively, if guests do not wish to book online they are welcome to contact Manami Kamijo, Sales Manager to make a reservation by phone or email  directly. Please be advised that you must book thru for Manami in order to get the special rates.

Contact: Manami Kamijo, Sales Manager (Monday to Friday, 9am

              to 4:30pm)
Phone:  (direct): 250-413-2193
Email:    manami@bestwesterncarlton.com

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AIRBNB offers a range of accommodation. If you have not used Airbnb before you can use the link below to receive a credit on your first booking.

https://www.airbnb.ca/c/ttownsin?currency=CAD

Contact us: info@curebs.com

Follow our journey:

 Mail: Cure Blau Syndrome Foundation 1138 Old Esquimalt Rd.   Victoria, BC  Canada V9A4X6

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