The Cure Blau Syndrome Foundation is hosting the inaugural Research Symposium at Royal Roads University in Victoria, BC. on June 25-27th, 2020. With fewer than 200 documented patients in the world who have Blau Syndrome– a painful, life-threatening condition that starts in childhood and causes inflammation in the skin, joints, eyes and visceral organs, - this symposium will bring together the greatest minds in science with the patients who suffer from this syndrome to work towards a cure.
Your sponsorship will help ensure that leading experts can come together to brainstorm research ideas while informing and engaging people living with and affected by Blau syndrome. If your company would like to be involved in the Cure Blau Syndrome Research Symposium,we have several opportunities for sponsorships. For more information on how to become a sponsor please contact us at email@example.com
The Blau Syndrome Research Symposium Committee
Lexi Townsin was the inspiration for the symposium, but tragically lost her life to Blau at 6 years old in October 2019. We were making progress towards a cure for Lexi, but sadly we ran out of time. There are many others who are still in desperate need and we are determined to continue our quest in Lexi’s honour. Research into this rare disease, may hold the answers to curing so many genetic diseases. We hope our sad story, may be someone else’s happy ending. – The Townsins