top of page


We need your help! There are many ways you can play a part in curing Blau syndrome ie. medical research, fundraising, 

administration, spreading awareness etc. We have postions for all levels of commitment and all skill sets. Learn more.



There are so many ways that you can help us. Check out our fundraising page for some ideas. 


Lexi's brother, Felix has written a book Don't Floss your Toes - Advice From a 5-Year Old with proceeds donated to Cure Blau Syndrome. The book is available online.

Don't floss your toes.jpg

Funding and resources for rare diseases are almost non-existent. Even a small donation makes a huge impact. Thank you for your generosity, It means so much.


Special thanks to Fidelity Investments Canada for their generous corporate donation.


Fidelity Investments logo.png
bottom of page