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  • Funding and resources for rare diseases are almost non-existent.

  • Even a small donation makes a huge impact.

  • Donations can be sent by cheque or online. Thank you for your generosity!

  • We need your help! 

  • Volunteer, internships, and fieldwork positions are now available relating to fundraising, event coordination, social media, research and public relations. 

  • In our search for a cure, we are building a global community of patients, families, researchers, doctors and innovative thinkers to collect and share valuable information about this rare condition.

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Follow our journey: cureblausyndrome