Virtual Blau Syndrome Research Panel
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Do you have a story to share? 

Contact us at

We would love to hear from you!

Funding and resources for rare diseases are almost non-existent.

Even a small donation makes a huge impact.

Donations can be sent by cheque or online. Thank you for your generosity!

We need your help! 

Volunteer, internships, and fieldwork positions are now available relating to fundraising, event coordination, social media, research and public relations. 

In our search for a cure, we are building a global community of patients, families, researchers, doctors and innovative thinkers to collect and share valuable information about this rare condition.

Ask a Researcher!
Have a question about Blau Syndrome? Submit your questions and each week an expert in Blau Syndrome will answer chosen questions on our Foundation Facebook and Instagram pages. If you'd like to remain anonymous, please enter as your email and leave "name" blank. 

Contact us:

Follow our journey:

 Mail: Cure Blau Syndrome Foundation 1138 Old Esquimalt Rd.   Victoria, BC  Canada V9A4X6

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